traumatic brain injury, veterans, families, caregiving, measurement, patient-centered outcomes
This study aimed to identify the sequelae of traumatic brain injury (TBI) that are most troubling to veterans with TBI and their families and identify veteran-family differences in content and ranking. Instead of standardized measures of symptom frequency or severity, which may be insensitive to change or intervention effects, we used a target outcome measure for veterans with TBI and their key family members, which elicited open-ended reports concerning the three most serious TBI-related problems. This was followed by Likert-scaled ratings of difficulty in managing the problem.
In this cross-sectional study, interviews were conducted in veterans’ homes. Participants included 83 veterans with TBI diagnosed at a Veterans Affairs medical rehabilitation service and a key family member of each veteran. We utilized open-ended questions to determine the problems caused by TBI within the last month. Sociodemographic characteristics of veterans and family members, and veterans’ military and medical characteristics were collected. A coding scheme was developed to categorize open-ended responses.
Families identified nearly twice as many categories of problems as did veterans, and veterans and families ranked problem categories very differently. Veterans ranked cognitive and physical problems worst; families ranked emotional and interpersonal problems worst.
Easily administered open-ended questions about the most troubling TBI-related problems yield novel insights and reveal important veteran-family discrepancies.
Winter L, Moriarty HJ, Piersol CV, Vause-Earland T, Robinson K, Newhart B. Patient- and family-identified problems of traumatic brain injury: value and utility of a target outcome approach to identifying the worst problems. J Patient Cent Res Rev. 2016;3:30-39. doi: 10.17294/2330-0698.1204
The initial publication of this article included a bar graph with an incorrectly scaled axis (Figure 2; p. 35). The PDF currently available for download was last updated on July 18, 2016, with a revised Figure 2 that accurately reflects the corresponding data detailed in the Results section.